Rewind to last week:
So that put us as possible surgery on Monday of this week. Well Thursday last week Danielle had been showing us that she wasn't quite herself. Everything lab wise was fine and to the nurses she was happy, but we could tell by a few small things that something may be brewing. The nights were sleepless, she was little clingy and started not eating much. In fact it was a full 24 hours on Friday before she took a bottle. So Friday morning I fed her 9 ounces and she gobbled it down and wanted more. I waited a couple hours and she gobbled down 7 more ounces, and also threw it up, ALL OVER MOM. Ugh. We had the funniest nurse that day, one that actually had both of our kids when they were in the NICU here, and she is also a young Mom so she thought nothing of taking the suction machine to my chest to suction the puke off of me and my child before I got up and had it ooze to the floor. GROSS, yep, it was GROSS! But this incident was also scary. She was vomiting and her eyes were rolling to the back of her head, she was white as a ghost and she was sweating like crazy. This mama was pretty worried.
Middle of the night rush to an MRI and Mom waits for her in a quiet, empty room.
The CSF fluid drains into the reservoir, the nurses measure and drain it into the bag every 2 hours.
Sound like a lot, it is. And honestly I know more about the human brain, etc now than I ever knew I even needed to know before.
They will be placing only one shunt. They feel that her previous left shunt was taking care of both sides, so they feel placing only one will suffice. Now they are not able to use any previous incision Danielle has, and that will be hard. If you look at her head she has incisions everywhere and because she is so small they are very limited on space. so they did talk about going in on the right side, even tho the shunt would control the ventricles on the left. Also they talked about doing a Septostomy. The Septostomy would be performed by her Neurosurgeon in the OR with the other doc as well. The Septostomy would poke a small hole between the 3rd and 4th ventricles so the fluid can flow freely so they could get by with only placing one shunt. Again this will all be literally a game time decision.
This is by far the best, most proud, big brother ever!
My Dad, Grandpa Kinney, came to sit with Danielle for 3 days!
Cousins Kim and Kris came to sit with Danielle also!
She got her very own Scentsy buddy,
thanks to a lot of donations to the hospital by some wonderful people!
Between 515-6am every single morning the Neurosurgery team does their rounds. You can't even see all of the Residents in this picture, there are usually around 10 of them and they stay for usually 1-3 minutes. Just long enough to wake up a sleeping babe.
Night before, presurgery special treat! YUM!
Night before, presurgery snuggles with Daddy
Happening Now: Danielle is sound asleep having peaceful dreams :-)