It has been awhile since our last update, not on purpose! After Danielle's surgery in June was a success we were soaking up every minute of being HOME. Despite everything this poor child has gone thru, it was all proving to be needed and her progress had been remarkable!
The absolute most exciting moment came in gym class with her peers when one day they put Danielle in her gait trainer and she took 10 steps. We were in awe, it brought this Mommy to tears, absolutely amazing and moving with the people she loves the most! The next week came and Danielle wow'd us again by taking not only 10 steps but moving up to 37 steps, yes 37! Absolutely incredible!
Each week brought therapy sessions again, on-top of school and lots of work at home by Brad and I and her nurses during the week.
December 10th was the day for surgery, if we didn't take these measures now we would be risking a very complicated, more painful surgery involving pins, plates etc to keep her hips in place, NO THANKS! We will do whatever we need to do, to avoid that!
This was absolutely devastating for us and all in anticipation for how rough it would be on Danielle. No only did this mean pulling her out of school to prevent illness before surgery, but it meant being literally confined to home, not being with our family for the Holiday's and isolating ourselves for our girl's best interest. We knew it needed to be done and we didn't wait a moment longer to put preparations into place.
You can see the lines drawn in pen on the xray from April showing where the middle of the ball should be in each socket. You can see her right side is a bit off but the left side looks good, the ball is pretty well in the socket.
About halfway thru surgery Brad stepped out to get some coffee and he ran right into our angel. He peeked his head around the corner quickly waiving me over with his hand. I was more than shocked to see our Neurosurgeon and was just as shocked to see us! Immediately he asked Brad, 'what are you doing here, what is going on?' I am sure thinking he was missing something very serious! I explained to him Danielle was in surgery with Orthopedics for her hips, his response was ' good good that means she is growing, it sure tells me that I think and believe that we've done something right.' He gave me the biggest hug and a big sense of relief filled my whole body. You see he was coming up to talk to a family who he had just done surgery on their family member, if Brad would have stepped out 1 second later we wouldn't have seen him. It sure is absolutely amazing how God puts people in our lives at the moment we need them the most. As I was hugging him I looked up and saw the family members he was waiting to talk to with tears running down their face, I am sure more than concerned about their family member. I wish I could have another minute at that time to ensure that family how lucky they are to have that person under the best care of the best Neurosurgeon in the world.
Danielle came thru surgery very well. She had about 3 hours of non-stop crying until we got pain under control and that was by far the hardest part. She then was throwing up from all of the morphine, and she was quickly figuring out she couldn't move. By later that evening she was comfortable and showing us our Danielle smiles. She sure is amazing! Her doctor surgeon came in that evening and said we would be staying the night and to not be surprised if her pain the next day was even worse. He would follow-up with us then.
Going home was quite a process. Because of her cast she could not be in a car seat. We had to get a special harness from the hospital to lay her down in the backseat of my car and strap her in. Her feet also had to stay elevated above her heart at ALL times. Thank goodness for amazing nurses to help us get situated and on our way home!
We are extra thankful for our nurses that take such good care of her each day. We would be absolutely lost without them and they are one of the best gifts we've received this year. They keep our minds at ease while we work during the day, they treat Danielle as if she were their own, they love her, sing to her, read to her, play with her, care for her and snuggle her each and every day. They are a big part of her recovery and for their care we are forever thankful.