This past week we received Danielle's iPad from school. It is set up with the Proloquo 2 Go program, which we have been using at therapy as her 'communication' device. This program is flat out AMAZING! We are SO excited to finally, now have it at home to use with her as well. Danielle fully knows this device and as she learns to speak more words thru her verbal language, this will assist her to get those thoughts communicated thru us. Last night I sat down and personalized our family members, there is so much more to personalize and over the next week during the time I am watching my girl heal, I will be working on this as well! Here is a little sneak peek and quick demo!
This week has been a busy one for Danielle. The week began home with Daddy on Monday for the Holiday, Danielle has begun an icky cough so it was a perfect snuggle day for them.
Brad was also out of town this week so it was Mommy duty 100%. We managed and after a couple of stay home days with my girl she seems to be a little better. Neither of us want this surgery postponed so we have tried to keep her away from any other germs etc so she gets better fast. Tomorrow is a re-check that we hope brings good news.
Wednesday during our stay home day, our RN Case Manager from the Home Health Agency we are using after surgery came and did Danielle's admission paperwork. It was a LONG 3 1/2 hour appointment at our house. But it was very nice to be able to meet the Case manager in charge of the RN who will care for Danielle. We have 45-60 hours of in home nursing care set up after surgery for Monday thru Friday. This will be a BIG adjustment for ALL of us, especially Danielle. But after our meeting and being able to speak with this lady for a decent amount of time I began to feel much more comfortable with the idea. It will be an RN or LPN that will be caring for her, NOT an aide much to my surprise but I was very happy to hear it will be a skilled nurse. This week we will be meeting her actual nurse and we are very eager to meet this person and are praying like crazy she is the right mix for our daughter.
As I feel we are on a bit of a journey we do not want to have any road blocks get in the way of our ultimate end in sight, helping our little girl grow and develop more than ever after this surgery. It is going to be a week of anticipation this week. Today Mommy's nerves have begun to put a pit in my stomach but we will tread thru. Anything for our little girl. We will find our Courage for her.