I arrived home from work yesterday to a voicemail on our home phone that we needed to talk about pre-op for Danielle.....huh? I was puzzled and a little bit fearing that they were going to continue with surgery for this Thursday. Of course at 515 at night the clinic is closed so these thoughts weighed heavily on my mind all night long.
Just a few minutes after 8 this morning I couldn't have dialed Neurosurgery any faster than I did, almost in a panic to get clear information! Here is the plan as of now, as we all know, it COULD change. But let's hope not!
*Next Monday, the 29th we will head to the U to have Danielle's sutures removed.
*Wednesday, May 1st, she will have a T2 MRI scan and we will meet with her Neurosurgeon. This was a blessing because before she had not been set up to have another MRI for 5 weeks and I was a bit worried that her new shunt may be draining too much fluid too fast and we wouldn't know. Now we will, this will give a great picture of how both of her shunts are performing and what the new 3rd ventricle cavity is looking like as well as the cavity on the right from her 1st shunt.
*Thursday, May 9th, we will head to the U for pre-op appointments.
***Friday, May 10th, SURGERY DAY. This will be the same surgery that was set up for last week that he changed at the last minute. He will go in thru the base of her brain, above her spinal chord and under that main artery. It is extremly serious. See this previous post for the description. Surgery Description....
Yesterday, our in home nursing care resumed. It was a very quiet day for Danielle and she was pretty quiet herself. She didn't eat any of her bottles for the nurse, which I kind of expected since her head is still pretty ouchy. She did need a couple doses of Tylenol, which was very understandable especially since I hadn't given her any the night before. Last night she was hungry but I could tell that it may have been a little painful for her to get that hard suck going to get all of her bottles completed, she did but it did take some extra time.
She was up in the night, ugh, so at 1:30am I did give her Tylenol hoping it would help her fall back asleep. Nope she started fussing at about 4am.
Now this morning she was more like herself than she had been yet. So maybe her getting up in the night was less pain and more hunger? I sure hope so! She did her big giggles when I got her up out of bed and took her bottle with no problem at all. This was a really great sign hoping that this is her feeling pretty good and the first time we had heard those big giggles since before this last surgery.
So this May, lord, please let us see a Miracle for our little girl. Please protect her Neurosurgeon's hands in this extremely serious 7 hour surgery. We pray this is the last of these surgeries for our girl and that this summer she can relax and recover and grow and be all ready for Kindergarten in the fall!! Where has time gone?! Kindergarten already?! We are so excited for the wonderful things she has coming her way, just need to get thru and past May 10th first!~
We are hoping this is the beginning of a wonderful Summer for our girl! There is lots of fun to be had for both of these Holub kids after we get thru this Surgery!
We are better when we are having fun together! Let the healing begin!