We went back to the U for follow-up a week ago last Friday. Her and I went down in the morning and she was a happy little girl. Sure enough we got there and just on our trip down and when we got checked in she spiked a 100.7 fever. Where in the world it came from I have NO idea. UGH. So to be on the safe side, even tho her incision looked good, they ordered labs and a chest x-ray and a urine test. This made for a long morning and what was to be a painless checkup for our girl was no longer..... she had ouchies :( They also started her on a new antibiotic which was some nasty stuff. Even flavored the antibiotic was extremely bitter. We started that on Friday and waited the results of her lab work. But she was a trooper, fever and all and still a smile on her sweet little face.
Monday her labs came back ok. One of her inflammation markers was high, but we knew that was from her incisions. Also over the weekend, her bottom incision which we noticed was a little bumpy looking, it appeared a stitch from one of the underneath layers was poking thru. So when I was on the phone with the PA on Monday I casually asked her what we should do if we notice a stitch poke thru. Her response shocked me, she gave me the ok to pull it out with clean tweezers, NO WAY, I opted for cleaning the area and leaving it be. Those stitches may do that because they take 3-4 MONTHS to dissolve, I was told! I could not believe it, 3-4 months! Wowzers! So that answered my next question, if she will have a new incision or if they will use one of the current ones, nope, new incision it will be.
Later last week we also got the results of her UA and she has a bit of a Urinary Tract infection which she has never had before. So we stopped antibiotic #2 and switched to another antibiotic to clear that. Thank goodness for Probiotics that she takes daily to keep that good bacteria in her body. We really dislike her being on these antibiotics but she must be clear for surgery so that is necessary.
This week coming up is a big week. With her scans and also meeting with her Neurosurgeon to hear his plan for her upcoming surgery, it was necessary this weekend to take some time to just enjoy these kids. Danielle's big angel brother Dalton would have been 8 years old on Saturday, so we decided to get out and have a day planned by Dylan. We headed to Build A Bear to make 'bears' in Celebrations of Dalton's day. Danielle was extremely happy to be out of the house. She squealed with delight in the car on the way to IC and loved her stroller ride. Out side of a few doctor appointments this was her 4th trip out of the house since February. It was a very nice day celebrating and remembering our first born son.
She absolutely loved getting to stuff her bunny and warming its heart!
Meet Spiderman Cheetah, Pretty Bunny and Angel Dalton Bear!
Time will tell what this week will bring. I am praying for a smooth week with good scan results and a good pre-surgery appointment with her Neurosurgeon. We are optimistic that this week will bring good scans and a good plan from her doctor.
Something to look forward to this week is on Wednesday we are able to meet at our home, Danielle's new Kindergarten teacher next year! She is coming out with Danielle's current pre-school teacher for a home visit. We are very excited to meet her and to hear all of the exciting things that next school year will bring.
She has continued having PT, Speech as well as Pre-School time in our home the past couple weeks and she is LOVING it. Not only is she loving the extra attention she is also loving the work out her little body is getting. Poor thing her body has been out of sorts since she has been out of her regular therapy routine. Having these therapists come to our home has been such a gift and we are very pleased with how things are going.
If you have a free minute or two and can pass on a good thought or prayer on Tuesday and Wednesday this week for Danielle that would be much appreciated.
Happy Easter all! I hope you enjoyed your day with your family as much as we did!~