Sunday, April 14, 2013

The time is near.....

24 hours from now we pray our daughter will be thru surgery and on the road to recovery for her new life with endless possibilities.
Friday started at the U early for pre-op checks and a recheck with her Orthopedic doctor. She was SO excited to be out of the house and riding in the car with her big brother. It was evident as she watched him on the car ride all the way to drop him off at school, the smiles were from ear to ear!
All looked good from her Orthopedic doc's aspect. They did a hip and pelvis x-ray and it looked virtually unchanged from before and maybe a tiny bit better. From there we went to see the Neurosurgeon's ARNP for a pre-op check and consent. From there we went for labs. All looked good, it did come back that she still has a bit of a UTI which we are again treating.
 This is how we try and protect as much as we can while at the hospital. We cover her up in passing to try and keep those germs away! She is such a trooper!
And she is so sensitive. During labs while waiting our turn, when she heard a couple other kiddo's cry she puckered her lip up in an instant.

8 am tomorrow morning she will be under the direct care of the worlds BEST Neurosurgeon. We cannot do anything besides hope and pray that the angels protect his hands as our daughter is in his care. This is a very evasive 7 hour surgery at minimum and there is so much unknown, yet we are finding ways to let that unknown stay by the wayside and we are focusing on the endless possibilities to look forward to for our daughter. New skills, a new body less tight feeling, less pressure and continued smiles are what we are looking forward to.
Unfortunately we have not yet been able to get a room at the Helen Rossi house in the hospital like before. We are on the waiting list and hopefully a room will open up tomorrow.
So this evening we are home, which is ok. More time to prepare and relax. We had the most wonderful visitor come today, my Mom and the kids Grammy! She came here from PA to be with us this week and I especially are SO thankful! Everything is better when Grammy is around :-)
Sister has SO much to say!

We will be at the hospital shortly after 6am and they will take her back to the OR right at 8. We are nervous yet very ready for this surgery to be behind us. It is very hard knowing the pain your child will endure and extremely hard trying to explain that the end result hopefully will be for the better. We have spent some time today reflecting as a family and enjoying this time together. We are enjoying our girl, giving her extra snuggles and giggling right along side her. She sure is precious and we are so blessed to have her in our lives. She teaches us every single day life lessons and this isn't about the stuff you have or the places you go, its about the love in your heart and how you show that love unto others. No doubt she shares unending love with us.
                                     

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