Today was a great day. Both kids had appointments in Iowa City and at the same time....together.....it was crazy! Starting with Danielle we were asked to take her off oxygen 4 hours before the appointment then they would test her saturation's at the beginning of the appointment to see where she was. Well mommy and daddy decided to take her off oxygen 5 hours before the appointment because we were pretty sure that she was ready to come off. So mommy took the canula off this morning and Danielle was extra happy. No tubing around her head, taped to her face, she was a new woman. When we got to IC there was a room full of people waiting for the kids. The PT and her student, the ARNP and her student, the doctor, the Care Coordinator, mommy, 2 kids and thankfully Grammie is here visiting and was able to go with and HELP! So the PT is wonderful and wanted to do her evaluation first, so they plugged her into the oximeter, I tried not to glance over but couldn't help it and was SO excited with what I saw, 98% after 5 1/2 hours! So the just of the day is that Danielle got to COME OFF OXYGEN!!!!! We are SO SO SO excited and happy for her. She is such a big girl and growing strong every day.
The PT worked with her for about 1/2 hour while they did the 'study eval' on Dylan. She was happy the whole time, loved being worked over, her sats never dropped, she never made a peep, just looked around and smiled. It was great. She is weighing in at just over 14 1/2 pounds now and is over 2 ft tall! She is following the growth curve very well, they are happy for her. They also told us that we could stop the Apnea Monitor but mommy isn't quite ready to give that up yet. Mostly because Danielle is now officially in her big girl room and sleeping in her crib. So it is so nice to be able to have that monitor as a little extra security, knowing it should alarm with any breathing issue or low/high heart rate issue. So they said mommy could wean that on her own time, when we are comfortable. But we will try and do it within 2 weeks.
So now that Danielle is sleeping in her room and her crib she is sleeping even better. She slept all night before but now we usually have to wake her up during the week for early morning feedings before daycare. It is great. She sleeps from about 8:30-9pm until 5am and the weekends until usually 6:30 or 7, she is thankfully adapting very well. She is liking all of that extra space and her room is nice and dark, just how she likes it and toasty warm. It is great.
She is continuing to love to be held. I mean ALL of the time. We are cherishing these moments though. She loves play time on her quilt but after about 10 minutes or so she will squeal because she wants someone to play with her, so that is what we do. She loves Bumbo time, the PT told us to get her a tray for it and put toys on the tray to encourage her to pick them up, so we will do. She loves her rattle and her rings and her musical toys too. She still loves music time in her crib and she really loves bath time with music as well. It is relaxing for her. She is a very happy girl and we couldn't be luckier to have 2 happy kids who love snuggle time! So we can't wait to watch Danielle thrive even more now that she does not having that tubing around all of the time. She had a very busy day today and is sleeping soundly tonight. Here are some before and after pics of our little princess, we are so fortunate God blessed us with her. We love you Danielle Marie!~
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