Sunday, December 14, 2008

Getting Big...


A week ago last Friday I took Danielle in for her re-check for her ears and her 4 month shots. Well unfortunately just as we had figured the Amoxicilin did not cut it and she still had double ear infection just as bad as 14 days before. This was a real bummer because it meant yet another 10 days on another antibiotic and that for the previous 14 days her ears had still been bothering her. The only real clue that her ears may still have been bothersome is because her eating was really all over the place, 2 ounces here, 4-5 ounces there, nothing consistent like usual. Now we are for sure her ears are better because sometimes 4 1/2 -5 ounces doesn't cut it and she is still hungry or hungry before 4 hours, so this is a great thing. She is really getting big, she is weighing in at just over 11 1/2 pounds and is 22 1/2 inches long. Dr. Collins decided to wait until her recheck this coming Friday to give her the 4 month shots. She also on Thursday, gets her Synegis (RSV Preventative) shot, it is very nice because our in-home nurse comes and gives that.

Danielle is now officially at daycare full time during the day now. Mommy is back to working in the dealership full time and Danielle is adjusting well. Our sitter is wonderful and Danielle took to her right away. She is very nurturing and will snuggle with Danielle which is great because that helps her not only developmentally but it helps her to know that even though it isn't mommy or daddy she is still being loved! She has an oxygen set up at the sitters also and thankfully our sitter is comfortable with how everything works, pretty much everything is de ja vu from Dylan. We have been consistently giving Danielle tummy time throughout the day, our sitter is great at being consistent at what we do at home. This is really helping Danielle, she is pretty much holding her head up for a long period of time and she will really push up with her hands while on her belly to look around. She is a nosy little thing and doesn't miss much!

Last Tuesday during the ice storm Danielle had her Neurosurgery follow-up in IC and her MRI. We decided to still take Danielle, despite the weather, because a re-schedule appt would not have been until the end of January and she needed to be re-checked before then and also her doctor is leaving the U to go practice in Australia and this was his last visit with Danielle. So I left work early to see if we could get Danielle in earlier, hoping there had been some cancellations. Good thing too because not only were the roads nasty but Danielle decided that she didn't exactly want to cooperate for the MRI. It was the same girls as last time thank goodness! So I had just fed Danielle and she was set up for 'no sedation'. Well she was wide awake and kicking and screaming thru the whole thing. Needless to say, 4 attempts, 1 bottle, 1 poopy diaper, 1 hour and 15 minutes, numerous positions later we got it accomplished and we were off to see the Neurosurgeon. We ended up getting to see her doctor at the scheduled appointment time because the MRI took so long. So the doctor re-set her shunt setting, because the MRI magnet threw off the setting, and he kept it the same as last time. He was very happy with her, he held her and played with her a little bit and checked her all out! He started to say that they would see her back in a year, that was GREAT news but I was like, Wow a whole year?! Then he said, 'well, lets do 6 months.' So I asked him for a great referral for Danielle to see another Neurosurgeon in his place and I told him that we would not be willing to follow with the Nurse Practitioner. He laughed, and pointed in the hallway to an office across the hall and said, 'get him, try and get him'. I looked and it was a World Renown Neurosurgeon, and the one who I wanted Danielle to see initially when she was transferred from St. Lukes. It didn't work then because Danielle's case was not as emergent as other children that were being seen at that time. I was thrilled when he said that is who he would refer us to because he is the Best of the Best! If she needs to be followed by Neurosurgery this is where we want to be and who we want to see her.

So Danielle is doing great! She is growing and growing, her growth chart at the doctors office is amazing when we look at the charted progress she is making! In January she has an eye exam, repeat hearing screen, Developmental Follow-up and Room Air test off her oxygen again. We pray for health, happiness and safety for our precious baby girl now and throughout the new year!~


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