We decided that we would take Dylan out trick or treating and then would come back up to the hospital to stay again. Late yesterday afternoon we headed home. We had dinner and just were walking out the door to take Dylan out when the hospital called. My heart sank. It was Halloween. The day had been so good. Maybe it was nothing. Wrong....
She was calling to tell me Danielle had a seizure. What!!!! She has only ever had 1 seizure before and that was when her shunt malfunctioned last November. Brad rushed out the door fast as he could and headed to the hospital.
The night went on and brought test after test. Inconsistency after inconsistency and even as of now we don't know anything. The nurses report doesn't match what the recorders show. The doctors are all trying to figure this out. And it leaves us with minimal answers. This is when that parent guilt comes flooding back. We get a little comfortable, head home for a little bit and bam something happens out of our control and we don't know what truly happened because we weren't here.
They have this camera on her watching her all the time and electrodes watching her brain waives. So far all is ok. Because of the huge amounts of variables and inconsistency we are not allowing them to do any seizure med. We are speaking with neurology, neurosurgery plus the intensive care docs and looking at the recordings plus the high doses of meds she's on that could cause something like this.
Here is the reminder. Never get too comfortable when things seem easy or settled. There's a higher power in charge and we are reminded once again to trust, to be thankful, to believe and keep the faith that things will be ok.
On this first day of November if you have extra prayers in your heart, friends we could use some extra. We don't want any more Halloween tricks, it wasn't too fun for this FAM. May the ghosts and goblins be silent 😉
Much love to you today.
No comments:
Post a Comment