This first picture is Dylan at 3 months old
This second picture is Danielle today at just over 3 weeks old!
Sucking her thumb for the first time where we actually think she put it there for a reason, not just by mistake!
Brad and I have been talking recently about how we need to keep believing... believing in our daughter, believing in our son and believing in each other. It is just so important each and every day of our lives. We speak positively to our children, we speak life to them at difficult and stressful times and we will continue to believe in them.
Danielle continues to spend each day at an easy pace, we just keep telling her we believe in her! She had a good weekend. She is still doing great on CPAP. With 2 chest x-rays this weekend they decided not to take her CPAP down to a rate of 4 but to leave her at a rate of 5. This is perfectly fine with us and the doctors agree that we want to keep her where she is doing great and not push her too much. Her x-rays were good, but with a bit of haziness it is best to leave her where she is right now. She is requiring anywhere from 26-37% oxygen depending on her body position. She is a very positional baby. Recently, within the past 2 days, one nurse discovered a comfortable way for Danielle to be able to be positioned on her back. This is great because previously she did not like that position. To be on her back is great for head shaping and good for her developmentally also as her head is in the mid line position.
Last Wednesday Danielle had an IV in her arm that went bad during a blood transfusion. So they restarted another IV and continued with the transfusion. The next day the nurse noticed that her previous IV site showed a little streaking and had a little puss coming out of the poke spot. So the doctor ordered a culture of the drainage. On Saturday the culture grew and she has a slight infection. She was not started on antibiotics right away because they just wanted to watch her CRP and CBC. Over 2 days the CBC gradually went up and the CRP (left shift) went up as well. Today it only went up a minimal amount from yesterday but because it went up again, they have started her on 2 broad spectrum antibiotics. She is also in 'contact isolation' meaning that to be in her room, we as well as health care providers have to wear a gown, mask and gloves. It is sure disappointing that she has an infection, especially from an IV site, but being in a hospital environment it is inevitable, unfortunately. So we are just praying that this goes away soon and she stays healthy.
Danielle is doing great with her feedings. She is still getting 9ml's every 3 hours but they are now adding even more fortifier and additional protein and something else. ( I don't remember what, opps!) But she is loving her food!
Today we gave her a bath and she loved it. We had the CPAP off for a bit and her sats were still 97%, this was impressive! I was able to snap a few quick pics of her whole face! You can still see her NG (feeding tube) in her nose but it is a perfect shot of her cute little face. Her poor nose is smushed from the CPAP prongs and her little Nair's look so ouchy. But way better than being on the vent and her nose will heal when she is off CPAP and onto nasal canula oxygen. Dylan's nose was the same at one time and healed just fine. So here is a pic of Danielle from today and a pic from Dylan when he was on CPAP and we gave him a break so we could snap a whole face picture. They look so much alike, it is amazing, especially since Dylan was older in this pic of him. But there is definitely a strong sibling resemblance!
So our reminder for ourselves is to keep believing. It makes us feel so much better when we speak life to our children. We know it helps them to know that we believe in them and this ultimately helps them to be even bigger little fighters! We believe in Danielle and her strength and we believe in miracles. This is what gets us thru each and every day.~
Danielle continues to spend each day at an easy pace, we just keep telling her we believe in her! She had a good weekend. She is still doing great on CPAP. With 2 chest x-rays this weekend they decided not to take her CPAP down to a rate of 4 but to leave her at a rate of 5. This is perfectly fine with us and the doctors agree that we want to keep her where she is doing great and not push her too much. Her x-rays were good, but with a bit of haziness it is best to leave her where she is right now. She is requiring anywhere from 26-37% oxygen depending on her body position. She is a very positional baby. Recently, within the past 2 days, one nurse discovered a comfortable way for Danielle to be able to be positioned on her back. This is great because previously she did not like that position. To be on her back is great for head shaping and good for her developmentally also as her head is in the mid line position.
Last Wednesday Danielle had an IV in her arm that went bad during a blood transfusion. So they restarted another IV and continued with the transfusion. The next day the nurse noticed that her previous IV site showed a little streaking and had a little puss coming out of the poke spot. So the doctor ordered a culture of the drainage. On Saturday the culture grew and she has a slight infection. She was not started on antibiotics right away because they just wanted to watch her CRP and CBC. Over 2 days the CBC gradually went up and the CRP (left shift) went up as well. Today it only went up a minimal amount from yesterday but because it went up again, they have started her on 2 broad spectrum antibiotics. She is also in 'contact isolation' meaning that to be in her room, we as well as health care providers have to wear a gown, mask and gloves. It is sure disappointing that she has an infection, especially from an IV site, but being in a hospital environment it is inevitable, unfortunately. So we are just praying that this goes away soon and she stays healthy.
Danielle is doing great with her feedings. She is still getting 9ml's every 3 hours but they are now adding even more fortifier and additional protein and something else. ( I don't remember what, opps!) But she is loving her food!
Today we gave her a bath and she loved it. We had the CPAP off for a bit and her sats were still 97%, this was impressive! I was able to snap a few quick pics of her whole face! You can still see her NG (feeding tube) in her nose but it is a perfect shot of her cute little face. Her poor nose is smushed from the CPAP prongs and her little Nair's look so ouchy. But way better than being on the vent and her nose will heal when she is off CPAP and onto nasal canula oxygen. Dylan's nose was the same at one time and healed just fine. So here is a pic of Danielle from today and a pic from Dylan when he was on CPAP and we gave him a break so we could snap a whole face picture. They look so much alike, it is amazing, especially since Dylan was older in this pic of him. But there is definitely a strong sibling resemblance!
So our reminder for ourselves is to keep believing. It makes us feel so much better when we speak life to our children. We know it helps them to know that we believe in them and this ultimately helps them to be even bigger little fighters! We believe in Danielle and her strength and we believe in miracles. This is what gets us thru each and every day.~
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